AVA Team Members

Planning Committe

A Committee Welcome

We invite you to join us!

This is the very first edition of the AVC convention and first of its kind.

The AVC biennial Convention is a special time of the year where we gather together for self-renewal, individual support, social inclusion, social wellness, and deep community connection. The AVC biennial Convention blends the art and science of active support groups & experience sharing and provides many networking opportunities. We believe that high-quality Social care and support should be accessible to all and it is time to set the new standard of active social support for all living with Vitiligo in Africa.

Coming together, we are particularly excited to see how social support, care and getting us connect with eachother, sharing our stories and experiences, finding out how others cope and live positively all physically and through Technology  improves our quality of lives and self-renewal.. Over 300 individuals living with Vitiligo, their families, friends, stakeholders – Dermatologists, psychologists, mental health experts, well-wishers from around Africa and globally are expected in Johannesburg, South Africa in March 2018 for interactions, patient leader panels, small group discussions, workshops, special evening receptions and more.

Africa Vitiligo Alliance – AVA Blog

Contact

 

The Vitiligo patient leaders general contacts, as we progress we will upload planning committee contacts:

  • South Africa: Gaone Pat Tlhong, email –  gtlhong@gmail.com–                                        T: +27 79 014 2822
  • Kenya :  James Laban, email – visoke2012@gmail.com                                                            T: +254 725 115289
  • Ghana: Enam Honya, email – vitgogh@gmail.com                                                                       T: +233 24 054 8133Love Gifty Afezuke – email – loveviolet47@gmail.com                                                      +973 3629 9645
  • Uganda: Nakigozi Clare, email                                                                                                                         T: +256 756 733003
  • Zimbabwe: Donna Marowa, email –  donnamarowa@gmail.com                                 T: +263 77 226 1464
  • Senegal: Doudou Gueye Faye, email – vitiligosenegal@yahoo.fr                                       T: +221 77 700 01 63
  • Nigeria: Ogo Maduewesi, email vitsupng@gmail.com                                                             T: +234806 363 8030

About

AVC in detail is Africa Vitiligo Patient Convention.  AVC is a patient centred convention being organised by Vitiligo for Vitiligo patients, their family, friends, primary stakeholders, well-wishers and medical community.

 

 AVC – Vision An Africa that is Vitiligo aware and emphatic with active patient support and care.

Theme: The drive for more active patient support and care in the Digital Age

 The objectives of AVC is:

A candid and open discussion of what life is living with Vitiligo in Africa (sharing our experiences good and bad to offer one another emotional comfort and moral support).

AVC2018  biennial conference (South Africa) — in March 2018, supports Vitiligo patients and Vitiligo patient organizations/support groups in Sub-Saharan Africa as we seek to build & encourage eachother, build our self-confidence,  improve our skills, share ideas for active support and advocacy, and learn best practices to serve our patient groups better:

  • Fund workshops, technology or events
  • Support delegates from allover Africa with travel and conference scholarships (you can choose a country of choice).
  • Sponsor keynote speakers
  • Benefit from the opportunity to liaise with patient leaders, run focus groups, or learn first-hand how you can help patient leaders reach the patients you serve.
  • We have various sponsorship levels, starting in September 2017

 

Theme: The drive for more active patient support and care in the Digital Age

Date: 29 – 31st March 2018

Venue – TBD

29thMarch –

  • Capacity building of the Africa Vitiligo patient’s leaders from around sub-Saharan Africa.
  • Meeting and discussions with the African Vitiligo patient leaders on working together to fulfill purpose.

March 30 – 31st Convention

We plan to host workshops:

  • Patient workshops – personal wellness, self-help guide, positive living etc. This is aimed at assisting individuals living with Vitiligo to live better lives through simple techniques such as….
  • Well-being workshop – through this we hope to provide series of takeaway instructional methods designed to improve mental health, confidence, self-love, self-peace and capacity of patient support groups to share these practices.
  • Managing social isolation and social exclusion
  • Evidence-based self-help. How did you do it?

Educational Objectives

After attending this activity, participants should be able to:

  • Discuss the importance of Vitiligo patient Support groups meeting regularly, sharing experience and upholding eachother.
  • How we can improve active patient support using Technology.
  • Learn about effective Vitiligo self-help guide
  • Get deeply informed about Vitiligo clearing all myths and traditional beliefs about Vitiligo.
  • Discuss their Vitiligo conditions socially and medically, enlightening and educating others living with and without Vitiligo.
  • Experience Improved and great genuine self-confidence, self-esteem, courage and boldness to thrive against all odds
  • Assess the value of a Dermatologist/psychologist/patient partnership in improving health
  • Evaluate the role of evidence-based integrative holistic medicine in the treatment of Vitiligo
  • Learn about new treatment/management options locally and easily accessible.
  • Inspire new Patient leaders and equip with technical knowledge and guide on starting an active Vitiligo Support group in their locality.
  • Establish an Alliance and network of Africa patient leaders from various disciplines and geographic areas

The Africa Vitiligo Convention,

The drive for more active patient support and care in the Digital Age.

The Africa Vitiligo Convention dates are the 30th & 31st March at – Johanesbbourg, South Africa

Who Should Attend
29th March – Vitiligo Patient leaders in sub-Saharan Africa

30th – 31st March  – Vitiligo patients from all over Africa and globally, Patients & Families, friends, Health Communities, ehealth, Care Providers,  Global stakeholders, Dermatologists, Psychologists, Mental Health,  Personal & Social Wellness, Community Services

 

 

Home

Welcome to Africa Vitiligo Convention – AVC site!

AVC in detail is Africa Vitiligo Patient Convention.  AVC is a meeting of all individuals living with or affected by Vitiligo in primarily Sub-Saharan Africa, this is an initiative of Africa Vitiligo Alliance. AVC is being planned and chaired by Vitiligo Patient leaders in sub-Saharan Africa, we are coming together for the very first time to assure our brothers and sisters that they are not alone, engage and discuss our challenges, our issues, active support, this is designed to keep opinion honest and candid.

 AVC – Vision An Africa that is Vitiligo aware and emphatic with active patient support and care.

The objective of AVC is:

A candid and open discussion of what life is living with Vitiligo in Africa (sharing our experiences good and bad to offer one another emotional comfort and moral support).

Our Aims are:

  • Raise Vitiligo awareness to enlighten and educate Africa
  • To educate Africans that Vitiligo is beyond prejudice, it is a medical condition and not a curse, anger of the gods, not nemesis..
  • Generate funding to encourage, inspire, inaugurate and sustain more active Vitiligo patient support groups in Africa
  • A practical and effective 1day Capacity building workshops for all Vitiligo patient support groups leaders.
  • To create an African Vitiligo Alliance for maximum impact,

We want to be our brother’s keeper.

This is a gathering of Vitiligo patients, their friends and families with no outside influence that will hinder us from sharing it as it is. We are however inviting all stakeholders, Dermatologists, psychologists and the general public to join us.

 

Home

Welcome to Africa Vitiligo Convention – AVC site!

AVC in detail is Africa Vitiligo Patient Convention.  AVC is a meeting of all individuals living with or affected by Vitiligo in primarily Sub-Saharan Africa, this is an initiative of Africa Vitiligo Alliance. AVC is being planned and chaired by Vitiligo Patient leaders in sub-Saharan Africa, we are coming together for the very first time to assure our brothers and sisters that they are not alone, engage and discuss our challenges, our issues, active support, this is designed to keep opinion honest and candid.

 AVC – Vision An Africa that is Vitiligo aware and emphatic with active patient support and care.

The objective of AVC is:

A candid and open discussion of what life is living with Vitiligo in Africa (sharing our experiences good and bad to offer one another emotional comfort and moral support).

Our Aims are:

  • Raise Vitiligo awareness to enlighten and educate Africa
  • To educate Africans that Vitiligo is beyond prejudice, it is a medical condition and not a curse, anger of the gods, not nemesis..
  • Generate funding to encourage, inspire, inaugurate and sustain more active Vitiligo patient support groups in Africa
  • A practical and effective 1day Capacity building workshops for all Vitiligo patient support groups leaders.
  • To create an African Vitiligo Alliance for maximum impact,

We want to be our brother’s keeper.

This is a gathering of Vitiligo patients, their friends and families with no outside influence that will hinder us from sharing it as it is. We are however inviting all stakeholders, Dermatologists, psychologists and the general public to join us.

 

About

AVC in detail is Africa Vitiligo Patient Convention.  AVC is a patient centred convention being organised by Vitiligo for Vitiligo patients, their family, friends, primary stakeholders, well-wishers and medical community.

 

 AVC – Vision An Africa that is Vitiligo aware and emphatic with active patient support and care.

Theme: The drive for more active patient support and care in the Digital Age

 The objectives of AVC is:

A candid and open discussion of what life is living with Vitiligo in Africa (sharing our experiences good and bad to offer one another emotional comfort and moral support).

AVC2018  biennial conference (South Africa) — in March 2018, supports Vitiligo patients and Vitiligo patient organizations/support groups in Sub-Saharan Africa as we seek to build & encourage eachother, build our self-confidence,  improve our skills, share ideas for active support and advocacy, and learn best practices to serve our patient groups better:

  • Fund workshops, technology or events
  • Support delegates from allover Africa with travel and conference scholarships (you can choose a country of choice).
  • Sponsor keynote speakers
  • Benefit from the opportunity to liaise with patient leaders, run focus groups, or learn first-hand how you can help patient leaders reach the patients you serve.
  • We have various sponsorship levels, starting in September 2017

 

Theme: The drive for more active patient support and care in the Digital Age

Date: 29 – 31st March 2018

Venue – TBD

29thMarch –

  • Capacity building of the Africa Vitiligo patient’s leaders from around sub-Saharan Africa.
  • Meeting and discussions with the African Vitiligo patient leaders on working together to fulfill purpose.

March 30 – 31st Convention

We plan to host workshops:

  • Patient workshops – personal wellness, self-help guide, positive living etc. This is aimed at assisting individuals living with Vitiligo to live better lives through simple techniques such as….
  • Well-being workshop – through this we hope to provide series of takeaway instructional methods designed to improve mental health, confidence, self-love, self-peace and capacity of patient support groups to share these practices.
  • Managing social isolation and social exclusion
  • Evidence-based self-help. How did you do it?

Educational Objectives

After attending this activity, participants should be able to:

  • Discuss the importance of Vitiligo patient Support groups meeting regularly, sharing experience and upholding eachother.
  • How we can improve active patient support using Technology.
  • Learn about effective Vitiligo self-help guide
  • Get deeply informed about Vitiligo clearing all myths and traditional beliefs about Vitiligo.
  • Discuss their Vitiligo conditions socially and medically, enlightening and educating others living with and without Vitiligo.
  • Experience Improved and great genuine self-confidence, self-esteem, courage and boldness to thrive against all odds
  • Assess the value of a Dermatologist/psychologist/patient partnership in improving health
  • Evaluate the role of evidence-based integrative holistic medicine in the treatment of Vitiligo
  • Learn about new treatment/management options locally and easily accessible.
  • Inspire new Patient leaders and equip with technical knowledge and guide on starting an active Vitiligo Support group in their locality.
  • Establish an Alliance and network of Africa patient leaders from various disciplines and geographic areas

The Africa Vitiligo Convention,

The drive for more active patient support and care in the Digital Age.

The Africa Vitiligo Convention dates are the 30th & 31st March at – Johanesbbourg, South Africa

Who Should Attend
29th March – Vitiligo Patient leaders in sub-Saharan Africa

30th – 31st March  – Vitiligo patients from all over Africa and globally, Patients & Families, friends, Health Communities, ehealth, Care Providers,  Global stakeholders, Dermatologists, Psychologists, Mental Health,  Personal & Social Wellness, Community Services

 

 

Africa Vitiligo Alliance – AVA Blog

Contact

 

The Vitiligo patient leaders general contacts, as we progress we will upload planning committee contacts:

  • South Africa: Gaone Pat Tlhong, email –  gtlhong@gmail.com–                                        T: +27 79 014 2822
  • Kenya :  James Laban, email – visoke2012@gmail.com                                                            T: +254 725 115289
  • Ghana: Enam Honya, email – vitgogh@gmail.com                                                                       T: +233 24 054 8133Love Gifty Afezuke – email – loveviolet47@gmail.com                                                      +973 3629 9645
  • Uganda: Nakigozi Clare, email                                                                                                                         T: +256 756 733003
  • Zimbabwe: Donna Marowa, email –  donnamarowa@gmail.com                                 T: +263 77 226 1464
  • Senegal: Doudou Gueye Faye, email – vitiligosenegal@yahoo.fr                                       T: +221 77 700 01 63
  • Nigeria: Ogo Maduewesi, email vitsupng@gmail.com                                                             T: +234806 363 8030